Nigel has a disability - an inherited disease that means his nerves don't tell his muscles what to do - but he does not consider himself disabled. His youngest daughter Ellie has been diagnosed with the same condition. To inspire Ellie, and show her anything is possible, Nigel set himself a list of fifty challenges. This is the story of that list. Nigel and his wife Lisa have three children and, like all parents, they have always wanted the best for their kids. For Nigel, this meant helping them to understand that life is to be challenged: to be explored and enjoyed, no matter what obstacles you might have to face. Even during the darkest times, Nigel has never let anything stop him from realising his dreams. To inspire his youngest daughter, and let her see firsthand that anything is possible, Nigel set himself a list of 50 challenges to complete before he turned 50. Some are crazy, wild physical challenges, others are seemingly simple tasks people often take for granted. Some are activities Nigel has done before, others are skills he has learnt to cope with his condition that he wants to share with other people. All of them hold huge emotional significance to Nigel and his family. This is the heart-warming account of the year Nigel completed The 50 List. Inspiring and surprising, it will move you to tears and laughter, and leave you believing that you really can accomplish anything.
Published:28 February 2013
Genre:Coping with disability
Secondary Genre:Sports & outdoor recreation, Travel tips & advice: general
Illustrations:(1x8pp colour plates)
Nigel is 49 years old - he turns 50 in December 2012. He has a disability, and is in a wheelchair, but does not consider himself disabled. Nigel has a muscle wasting condition called Charcot-Marie-Tooth. It's an inherited disease that means the nerves don't tell the muscles what to do. The muscles themselves are fine, but they don't receive signals from the brain, which means they'll eventually waste away. The deterioration happens in sudden steps, rather than gradually - one day Nigel might be able to use a certain muscle fine, the next day he can't. Nigel and his wife Lisa live in Wellingborough with their three children. Their youngest daughter Ellie inherited Charcot-Marie-Tooth. She was diagnosed with the condition when she was five years old.